Title: Disparities in Rehabilitation Research Enrollment

Funded By: National Institutes of Health

Status: Ongoing

Overview: This research is a three-year study investigating ethnic differences and disparities as they may relate to participation in rehabilitation research. There has been no research on whether the known enrollment problems with regard to minority participation in biomedical research also exist in rehabilitation research. This study will investigate that purely empirical question about whether the rate of refusal in rehabilitation research differs by ethnicity. It will also investigate whether or not there are socioeconomic or educational factors that account for the differences. The long-term objective of this research is to design, implement and evaluate better recruitment and retention strategies to improve minority participation in rehabilitation. This research is a “nested study,” part of the five-year Clinical Trials Core of the Northeast Cognitive Rehabilitation Research Network (NCRRN) proposal.

For more information, please consult our NCRRN posting.

Presentations:
Research Ethics and Brain Injured Patients: Who and Why do Patients Become Subjects of Research? (APHA 2002)

Research Team:
Etienne Phipps, PhD, Principal Investigator
Diana Harris, MA, Project Director
Tina Harralson, PhD, Statistician

Moss Rehabilitation Research Team:
Myrna F. Schwartz, PhD, Principal Investigator
John Whyte, MD, PhD, Co-Investigator
Adelyn Brecher, MA, CCC-SLP, Recruiting Coordinator