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Pain is a common problem when you have an SCI. When pain isn’t controlled, it can limit what you can do and reduce your quality of life. While it is never a good idea to focus on your pain, do pay attention when you’re uncomfortable. Check your limbs and posture, and see if a change in your position helps. Pain can be your clue that something is wrong. If you notice a change in pain levels, be sure to let your healthcare team know. They can recommend changes in your treatment plan as needed. They can also teach you skills to help you cope. When you manage your pain as well as possible, this helps you remain active and care for yourself to the best of your ability.
With SCI, you’re more likely to have certain types of pain. These can include:
Pain from damaged nerves. This often occurs at the site of your injury or the area just around it or below it. It may cause numbness, tingling, burning, or sharp, stabbing pain.
Pain from the spinal cord or brain. This is felt below the level of injury, including areas where there is reduced or no sensation. The pain may feel like burning, tingling, freezing, or a brief jolt or shock.
Pain in your muscles, joints, or bones. This type of pain may be caused by physical damage at the time of your injury, wear and tear from aging or arthritis, or muscle overuse. The pain may feel like dull aching or throbbing. You may also have inflammation and muscle spasms.
Pain from your internal organs. This may be felt in your abdomen or chest. It is often caused by problems in your stomach, gallbladder, or bowels. You may have symptoms such as cramping, bloating, or constipation.
Pain can and should be treated. Tell your healthcare team about any pain that you are having. And work with your team to explore options for managing your pain, and balance benefits versus side effects. The best options for you depend on the type, severity, and cause of your pain. These may include:
Medications, such as NSAIDS (non-steroidal anti-inflammatory drugs), muscle relaxants, anticonvulsants, antidepressants, and opioids (narcotics) medications
Physical therapy and/or occupational therapy, exercise, wheelchair assessment, and activity modifications
Nerve stimulation treatments, such as transcutaneous nerve simulation (TENS)
Surgery, such as placement of a pump in the spine to deliver pain medication
Many people with SCI also report being helped by some of the following treatments:
Relaxation and meditation
Distraction, visualization, and positive thinking
Along with the treatments already mentioned, staying healthy can help reduce your risk of other problems and make it easier to cope with pain. Follow the guidelines you have been given for eating and exercising. Be sure to get enough sleep. Limit harmful habits, such as drinking and smoking. Also, be sure to see your healthcare team for regular follow-up visits. They are there to help you live healthy and well.
For more information about SCI, go to:
The National Spinal Cord Injury Foundation www.spinalcord.org
Christopher and Dana Reeve Foundation www.christopherreeve.org
Paralyzed Veterans of America www.pva.org