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Event Detail

    • Fitting Into Your Genes: Jewish Genetic Diseases-Data, Dilemmas and Decisions

      01/12/2014

      10:30 am - 12:30 pm

      A special symposium for the community to learn about and advocate for the screening of genetic diseases with a higher prevalence in the Jewish community.

      Location:

      Har Zion Temple
      1500 Hagys Ford Road
      Penn Valley, PA 19072
      Get Directions.

      Featured speakers:

      • Adele Schneider, MD, FACMG, Director of Clinical Genetics at Einstein Medical Center Philadelphia, Medical Director of The Victor Center for the Prevention of Jewish Genetic Diseases and Professor of Pediatrics, Jefferson Medical College.
      • Emily Kramer-Golinkoff, MBE (Master’s of Bioethics), a Co-Founder of Emily's Entourage, 501(c)(3) that has raised over $515,000 to accelerate Cystic Fibrosis research in just two years.
      • Pamela Grossman, OTR, MEd, an inclusion and educational consultant, and the proud mother of two grown children, one of whom has a Jewish genetic disease.
      • Jill Stopfer, MS, CGC, the Senior Genetic Counselor at the Abramson Cancer Center at the University of Pennsylvania.
      • Rebecca Carr, a ten year survivor of Stage III hereditary breast cancer who is passionate about spreading the word that “knowledge is power.”

      Genetic Screening

      The symposium will be followed by a screening event from 12:30 pm to 3:00 pm at Har Zion Temple for ages 18-44 to be tested for 19 specific genetic diseases. Registration for the screening can be found at www.victorcenters.org.

      This symposium is presented by Einstein Healthcare Network’s Victor Center for the Prevention of Jewish Genetic Diseases, along with Har Zion Temple, Jewish Family & Children’s Service of Greater Philadelphia, and Emily’s Entourage.